Welcome to My Life. My Myeloma., your centralized resource centre to help you have, and share in, meaningful discussions with your healthcare team on managing your myeloma. You’ll find specifically designed, invaluable tools and materials, uplifting and informative patient videos, educational videos, tips and information on exploring treatment options, a unique document for walking you through decision-making, and so much more.
Our goal is to enable and empower you to actively participate in your healthcare path … because it’s your life and your myeloma.
Myeloma Management Tools
The tools below are resources that help you facilitate conversations with your healthcare team while ensuring you are better prepared to understand and manage any challenges that you may experience throughout your patient journey.
My Myeloma Discussion Guide
Questions to ask and consider in your healthcare conversation
Are you newly diagnosed with myeloma? Experiencing a relapse? Download the My Myeloma Discussion Guide that corresponds to your situation for important questions to explore with your healthcare team. Topics include your treatment plan, goals, sequences and options that are best suited for you.
My Myeloma Decision-Making Guide
Considerations for making decisions that are right for you
The My Myeloma Decision-Making Guide will help you map out your thoughts, emotions, identify and understand what’s important to you as you evaluate myeloma treatment options. Making educated choices by taking into account your priorities and concerns will give you the knowledge that, together with your healthcare team, you’re making the right decision for you.
Myeloma Monitor
Your interactive, personalized tool to help you track and manage your myeloma
Developed entirely by Myeloma Canada, the Myeloma Monitor is an award-winning app designed specifically to help you organize, track, manage and understand the changes that occur throughout different stages of your myeloma journey.
Keep track of all of your medical results, appointments, medications, daily activities, feelings and more. Log your blood test results and graph how they’ve changed over time. Jot down questions for your healthcare team. Print out a report for your next appointment. The Myeloma Monitor acts as your ‘companion’, keeping you on top of all the moving parts involved in tracking and managing your myeloma.
Myeloma Drug Access Navigator
Discover which drugs are approved and covered in your province or territory.
Over the last 15 years, treatment options for myeloma have increased significantly with the addition of novel, targeted agents and drugs. However, in Canada, availability for these treatments, as well as drug coverage, varies from province to province. The process of finding this information can sometimes be confusing and overwhelming.
To simplify the provincial drug coverage information you need, Myeloma Canada has designed the Myeloma Drug Access Navigator tool. At a glance, see the drugs that are available and covered in each province and territory.
Financial Implications
A web-based resource to help you navigate and optimize your financial situation.
Whether at diagnosis, disease relapse or times in between, symptoms of the disease and side effects from treatment can affect a person’s ability to work, remain independent, and be socially involved. Over time, this can have long-lasting effects on quality of life and emotional wellbeing, leading to stress, anxiety, and/or depression.
Financial Implications of Living with Myeloma is intended to help you better understand your financial situation and help you optimize your finances to get the most out of what’s available to you.
Mental Well-being and Relapse
Questions, prompts and resources to support you during a myeloma relapse
Myeloma Canada’s Mental Well-being and Relapse: A resource guide for people living with myeloma is a comprehensive support tool designed specifically to help you manage your emotional and mental well-being as you or a loved one experience a myeloma relapse.
This comprehensive resource guide provides questions and prompts to help you navigate a relapse, resource links for local psychosocial oncological support, and an interactive discussion guide for use at your appointment with your healthcare professional.
Journey video: Click here to learn about Susan McDowell’s journey with myeloma and relapse
EDUCATION AND RESOURCES
The resources and tools below have been created to help you learn more about myeloma and how to manage it. You’ll also find information on how and where to connect with others impacted by the disease.
Treatment Options
You are unique, and your treatment plan will be too.
Whether you’re newly diagnosed or have experienced a relapse, find out about available treatment options to help you manage the disease and its symptoms, as well as promote your overall well-being and quality of life.
Educational Video
The latest on myeloma treatment options in Canada explained specifically to address the concerns of patients, caregivers and their families
Personal Clinical Trial Finder
Explore clinical trials that are recruiting, or soon to be recruiting, by using Myeloma Canada’s innovative Personal Clinical Trial Finder tool, equipped with easy-to-use and intuitive optional filters and parameters that focus in on your specific needs.
Multiple Myeloma Patient Handbook
We’ve created this all-encompassing educational resource to provide you with accurate, reliable and clear information on myeloma and its treatment.
More Information on Treatment Options
There is no such thing as “one-treatment-fits-all” when it comes to treating myeloma. What works for one patient may not work for another, which is why each case must be assessed individually.
Useful Resources
Get access to the information, tools, programs and services you need to become a more active participant in your healthcare
Find Support at a Local Support Group
Meet other patients, caregivers and their families at a myeloma support group near you.
Join a Virtual Support Group
Ask questions and participate in discussions with other Canadians, from the comfort of your own home.
Educational Publications for Patients and Caregivers
Reference these publications for essential, current information that zeros in on specific topics pertaining to myeloma.
Educational Videos
Get the latest on myeloma research and disease management, and hear from others like you who share their experiences about living with myeloma.
Drug Coverage and Access
Learn about the drug approval and reimbursement process for myeloma treatments available in Canada as well as Myeloma Canada advocacy activities.
JOIN THE MYELOMA CANADA COMMUNITY
The Myeloma Canada community is dedicated to providing all Canadians impacted by myeloma with access to the resources, treatment options, support and information you need, throughout every stage of your myeloma journey. Join our community and find out more.